The NDSS is administered by Diabetes Australia

Good health at every stage

Living with type 1 diabetes isn’t always easy. There are regular appointments with diabetes health professionals, daily diabetes self-care activities and ongoing monitoring of blood glucose levels. There’s a lot to think about when managing your diabetes and staying well. But that’s where the annual cycle of care can help. It’s a roadmap of key health checks to help keep your body healthy and reduce the risk of diabetes-related complications.
Lifelong-commitment

Lifelong commitment

Diabetes care is a lifelong commitment throughout the different stages of life. As the seasons change, so do your care needs. Working with your diabetes health professionals to complete the annual cycle of care checklist will help you feel supported and reduce the pressure of managing your diabetes. The annual cycle of care can also help identify any diabetes-related complications and other health problems early so that they can be managed.

Diabetes-related complications

Looking after your diabetes is very important for long-term health. If your diabetes is well managed and you take care of your general health, you can reduce the risk of diabetes-related complications in the future.

Large blood vessels

Atherosclerosis happens when plaque – made up of cholesterol, other blood fats and substances – builds up inside the walls of large blood vessels. This causes them to narrow and reduces or blocks blood supply to the heart, brain and lower limbs. This is called macrovascular complications (also known as cardiovascular complications) and increase the risk of heart attack, stroke and poor circulation to limbs.
Large-blood-vessels

Heart

Reduced flood flow to the heart increases risks of heart disease and heart attacks. People often don’t know they have heart disease until they develop symptoms such as shortness of breath or have a heart attack. Find out more in our Looking after your heart fact sheet.

Brain

Reduced blood flow to the brain increases the risk of strokes. Stroke symptoms can include weakness or numbness on one side, facial drooping, or speaking difficulties.

Lower Limbs

Decreased blood flow to the lower limbs can affect your legs and feet. This is peripheral vascular disease and can cause pain and changes in legs and feet. Long-term lack of blood flow can increase the risk of ulcers, infections, and amputations. Find out more in our Looking after your feet fact sheet.

Opthalmologist

Small blood vessels

Over time, blood glucose levels above target can damage the small blood vessels in eyes, kidneys, and nerves. This is called microvascular complications.

Eyes

Blood glucose levels above target can damage the small vessels causing eye disease (retinopathy). Other eye conditions like cataracts and glaucoma are also more common in people living with diabetes. Find out more in our Looking after your eyes factsheet. Register with KeepSight at keepsight.org.au to make it easier to remember to book regular eye checks.

Kidneys

Blood glucose levels together with blood pressure above targets for long periods can damage small vessels leading to kidney disease (nephropathy). Find out more in our Looking after your kidneys fact sheet.

Nerves

High blood glucose levels can cause nerve damage, leading to pain, tingling, or numbness in your limbs. This is called peripheral neuropathy. Damage can also affect other parts of the nervous system such as the digestive system, bladder, and sexual health and is known as autonomic neuropathy. Find out more in our Diabetes-related complications fact sheet.

Other body parts

Teeth and gums

Overtime, blood glucose levels above target can increase the risk of dental issues like tooth decay and gum disease. Find out more in our Looking after your dental health fact sheet.

Skin

Blood glucose levels above target for long periods can also increase the risk of skin problems. This includes very dry skin.

Hearing

People with diabetes are also at a greater risk of getting problems with their hearing.

Having regular check-ups is important so that any problems can be picked up and treated early.

Endocrinologist

Annual cycle of care

Routine appointments are the backbone of diabetes care. They allow you and your diabetes health professionals to monitor your diabetes and adjust your management as needed. 
The annual cycle of care is a checklist for reviewing your diabetes management and general health each year. Your doctor will do this review to help you, and your diabetes health professionals manage your diabetes, and your risk of diabetes-related complications.

The annual cycle of care includes the following health checks

HbA1c

Every 6–12 months
(or more often if needed)

This blood test gives an overview of blood glucose levels over the past 10-12 weeks. The result helps you and your diabetes health professionals decide if your diabetes management plan needs to be adjusted.

The general recommendation is to aim for a reading of 53 mmol/mol (7%) or less.  HbA1c targets can be different for different people. Discuss how often you should have an HbA1c test and what your target range should be with your doctor, diabetes nurse practitioner or diabetes educator.

Blood-pressure

Blood pressure

Every 6–12 months

Ideally, your blood pressure should be checked at every visit to your diabetes health professionals.

As a general guide, the target for people with diabetes is 130/80 to 140/90 or less. Discuss your target with your doctor. Research shows that keeping blood pressure within the target range reduces the risk of diabetes-related complications such as stroke, heart, kidney and eye disease, and nerve damage.

Feet-checks

Feet checks

Every 6–12 months
(or more often if needed)

Diabetes can reduce the blood supply and sensation to the feet. This can increase the risk of foot problems.

Depending on your risk of complications from diabetes, your feet may need checking once a year (low risk), once every 3 to 6 months (moderate risk) or once every 1 to 3 months (high risk). Ask your doctor or podiatrist how often you should have your feet checked.

Daily foot care is essential. Get to know your feet and check them every day. Use a mirror or have someone look at them if you can’t reach your feet. See your GP or a podiatrist if you notice any changes in your feet. 

Eye-checks

Eye checks

Every 1-2 years

Optometrists or eye specialists (ophthalmologists) check the health of your eyes. Over time diabetes can damage the blood vessels in the eyes. Eye checks are recommended at least every 1 to 2 years, or more often as your doctor advises.

Contact your optometrist or eye specialist as soon as possible if you notice any changes in your vision.

Kidney-health

Kidney health

Every year
Blood pressure and blood glucose levels that are above your target range for long periods increase the risk of kidney damage. A urine and blood test can help detect early signs of kidney disease.
Cholesterol-and-other-blood-fats

Cholesterol and other blood fats

Every year
Looking after your heart and blood vessels is important when you have diabetes. This is because diabetes increases the risk of damage to heart and blood vessels. Keeping blood fats such as cholesterol and triglycerides in your target range will help reduce your risk. Talk to your doctor about your individual target ranges for blood fats.
Pharmacist

Medication review

Every year
Your doctor will review your medications to make sure that the combination of all your current medications and doses are safe and right for you. You may also be eligible for a free Home Medication Review. This involves the pharmacy of your choice reviewing all your medications. Ask your GP for more information.
Dental-check

Dental check

Every year
Diabetes can increase the risk of gum disease and tooth decay. Regular dental check-ups can help keep your teeth and gums healthy.
Diabetes-management

Diabetes management

Every year
Your overall diabetes management should be reviewed at least once a year. A diabetes educator can work with you to help you keep your diabetes on track. Ask your GP if you can get a GP Management Plan. This may allow you to get a Medicare rebate for the consultation.

Personal health habits

Maintaining a healthy lifestyle is a cornerstone of managing type 1 diabetes. Your daily habits can have a significant impact on your overall health.

Healthy-eating-review 

Healthy eating review 

Every year

Following a healthy eating plan will help you achieve the best possible blood glucose and cholesterol levels, and help you manage your weight.

Ask your GP if you are eligible for a GP Management Plan to get a Medicare rebate to see a dietitian.

Regular-exercise

Regular exercise

Every year

Engage in physical activities that you enjoy and can maintain. Whether it’s walking, biking, swimming, or a team sport. The goal is to stay active at least 30 minutes on most days add in some resistance training 2-3 times a week.

Exercising with diabetes takes a bit more planning. You may need to take special precautions when balancing activity, insulin and carbohydrates (carbs).

Emotional-health

Emotional health

As needed

Living with diabetes is challenging and can affect how you feel.  Understanding how diabetes affects your mood means you can take steps to improve your emotional wellbeing.

This can help you manage your diabetes well. If diabetes is making you feel distressed, you’re not alone. Support is available. This can be friends, family or your diabetes health professional.

Maintaining-weight

Maintaining weight 

Every 6 months

When you have type 1 diabetes, weight loss and weight gain will impact blood glucose management.

There are different ways to measure weight, including BMI and waist measurements.

Speak to your doctor about weight targets and plans that are right for you.

Smoking

Smoking
 

As needed

If you smoke, quitting is the best way to reduce the risk of diabetes-related and other health complications.

It’s important but it’s not always easy.

Help and support are available. Talk to your GP or call the Quitline on 13 78 48.

How to live well and stay on top of your diabetes

Blood glucose target
Blood glucose target

Ask your doctor, diabetes nurse practitioner or diabetes educator about your target ranges. They will work with you to make a plan to stay on track.

Blood pressure
Blood pressure

The general recommendation is to aim for a blood pressure less than 130/80 to 140/90, or lower. But your diabetes health professional will give you a target that's right for you. Try to keep your blood pressure as close to this target as possible. When you visit the doctor, ask them to check your blood pressure.

Cholesterol and triglycerides
Cholesterol and triglycerides

Your cholesterol and other blood fats such as triglycerides should be in the recommended range for people with diabetes. Your doctor may give you medicine to help you manage your cholesterol and protect your cardiovascular system.

Eating plan
Eating plan

Choose a variety of foods like whole grains, fruits, vegetables, beans, lean meats or poultry, fish, and reduced-fat dairy or non-dairy options. Try to limit foods with saturated fat, salt, and added sugars. A dietitian can help you develop an eating plan that meets your  nutritional  needs and food choices. 

Physical activity and exercise
Physical activity and exercise

Physical activity and regular exercise is a great way to lower your blood pressure and blood fats. Aim for at least 30 minutes on most days. Don't sit too long—take breaks to move around. Check with your doctor before starting a new exercise program. An exercise physiologist or physiotherapist can help you develop an exercise routine that’s right for you.

Maintaining weight
Maintaining weight

Maintaining a healthy weight range makes is important for everyone. Ask your doctor what your target weight should be. It’s recommended to work closely with your diabetes doctor and dietitian to minimise the impact on your blood glucose management if you need to gain or lose weight.

Don’t smoke
Don’t smoke

If you smoke, try to quit. If it's too hard to quit on your own, ask for help. You can talk to your doctor or call the Quitline at 13 78 48.​

Diabetes health professionals
Diabetes health professionals

Visit your diabetes health professionals regularly. Don't skip your annual cycle of care health checks. These checks help to see if your diabetes is on track so that your risk of diabetes-related complications can be minimised. They also help to find any signs of diabetes-related complications and other health problems early so that timely management can lessen the damage.

Diabetes and hospital stays

During times of illness it can become more difficult to manage your diabetes. Hospital stays require some extra consideration.

Regardless of the reason for your hospital stay, your diabetes still needs to be well managed. Planning ahead for your hospital stay can help you manage your diabetes. This includes changes to medication, activities, eating patterns, as well as any fasting requirements. Always let your nurses and treating doctors know you have type 1 diabetes.

Blood glucose levels

Blood glucose levels can be higher during hospital stays, even if you don’t feel ill.

On the other hand, blood glucose levels can also be lower in hospitals if you eat less. You’ll need to check and monitor your blood glucose levels carefully. Your blood glucose target might need to be adjusted according to the circumstances. Talk to your diabetes health professional for advice.

Fasting

If you’re fasting or “nil by mouth”, this means you can’t have any food or drink. As a result, you may need insulin and glucose via an intravenous infusion or “IV”. This is also called an “insulin drip”.

If you’re on an “insulin drip” you must have your blood glucose levels checked more often. Usually every hour.

Infections

Diabetes puts you at a higher risk of infection and slower wound healing, especially if you have high blood glucose levels immediately before going into hospital or while you’re in hospital.

Like everyone, people with diabetes get sick sometimes

A personalised sick day action plan is a written step-by-step guide for when you get sick.

Start following your sick day action plan immediately if you feel unwell or have any signs of illness. Contact your doctor early to get medical treatment. This will help you avoid becoming more unwell and needing emergency care. Being able to manage diabetes when you’re sick using a personalised sick day action plan can reduce the risk of developing serious problems. 

Watch our on-demand webinar: Living well with type 1 diabetes - managing diabetes when you are sick.

Managing key life events and diabetes

Living with type 1 diabetes can add additional stress to key life events that already feel overwhelming. Events like losing a loved one, moving house, or changes in relationship can upset routines, test emotional resilience and challenge diabetes management.

Signs you might need extra support:

  • feeling as though diabetes is controlling your life
  • feeling frustrated about the demands of managing diabetes
  • avoiding parts of your diabetes routine
  • difficulty adjusting to life with diabetes
  • feeling alone and isolated.

What to do

Be aware of your feelings and stress during these difficult life events. You may want to share your thoughts with a trusted friend or join a support group. It’s important to know you’re not alone and help is available. But if these feelings start to be overwhelming, speak to your GP or diabetes educator who can help you get the support you need. You may benefit from seeing a psychologist or counsellor. Check out some wellbeing tips.

More information and support

Peer support

Go to the NDSS Peer Support website peersupport.ndss.com.au to find out more about peer support, hear from others living with diabetes, find a peer support group that suits you.

NDSS

Call the NDSS Helpline 1800 637 700 and ask to speak to a diabetes health professional.

Find a psychologist

Go to the Australian Psychological Society website at psychology.org.au.

Diabetes across the life stages

Living with type 1 diabetes is a lifelong challenge. Each phase of life brings its own set of considerations and adjustments.

Family and diabetes

A diagnosis of type 1 diabetes affects the whole family. It takes time and support to adjust to the diagnosis and lifestyle changes. Parents can feel anxious. Siblings can feel resentful. The family member with type 1 diabetes might feel angry and confused. Families need time and care to work through fears and emotions. Starting to manage type 1 diabetes is a steep learning curve for children and adults. 

With the right planning everyone with diabetes can thrive and live their best life. Young people with diabetes are encouraged to check out the Diabetes Youth Zone, for information designed with young people in mind.

Teenagers and young adults  

As young people grow up, they take more responsibility for their diabetes management and make decisions about their diabetes care.

Learning to manage diabetes is part of growing up and transitioning to adult care. Find out more about the transition and it’s challenges.

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Teenage years can also be a time of rapid change, newfound freedoms, and potential risks. And young adults need information about smoking, alcohol, drugs, body image, sexual and mental health, and how these things interact with diabetes.

Check out these resources to start the conversation:

Sexual health

Diabetes can contribute to sexual problems for men and women. This is because, over time, blood glucose levels above targets may damage the blood vessels or nerves supplying sexual organs. In men, this can lead to problems with erections (erectile dysfunction). And in women it can decrease sensation or increase vaginal dryness. Raised blood glucose levels can decrease sexual desire in both men and women.

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Sexual activities can cause low blood glucose levels (hypoglycaemia or hypo for short). If you’re concerned about your sexual health, talk to your diabetes health professionals. If you feel uncomfortable about raising the topic, it may help to prepare what you have to say beforehand.

Pregnancy

Women with diabetes can have a healthy baby, but there are extra risks during pregnancy. You can reduce these risks by getting the right advice and support before you get pregnant. Use the Pregnancy planning checklist to plan and prepare 3-6 months before you start trying for a baby. Talk to your health professionals so they can prepare and support you during pregnancy. 

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If you’re pregnant keep in close contact with your diabetes health professionals. Discuss blood glucose levels, insulin requirements, and other challenges of diabetes and pregnancy. If you’re not planning pregnancy, talk to your health professionals about contraception.

Read or download our:

Periods

Hormonal fluctuations during the menstrual cycle can impact blood glucose levels. It’s possible to experience raised blood glucose levels in the days before and during your period. 

Monitor your blood glucose levels more closely during this time and work with your diabetes health professionals to manage any fluctuations in blood glucose levels.

Menopause

Changes in hormone levels can affect blood glucose levels. Menopausal symptoms such as hot flushes and sleep disturbances can affect diabetes management.

Schedule regular appointments with your diabetes health professionals to develop a plan for menopause considering your individual needs and circumstances.

Managing diabetes as you age

As you age, you may need to change how you manage your diabetes. There may be additional challenges if you develop other health issues affecting your diabetes. Blood glucose targets may change. Reduced eyesight and mobility can mean early warning signs are missed.

Keep on top of your regular checks-ups to find any problems early on for timely management 

Aging and diabetes

As you age, you may develop other health issues which can make it harder to manage your diabetes.

Sometimes, it may be difficult to tell the difference between symptoms from diabetes versus those from other health condition or from ageing. 

Therefore it’s essential to keep up with your diabetes health checks.

Target ranges for blood glucose levels

As you age your target range for your blood glucose levels are likely to change. It’s important to reduce the risk of hypos. 

Especially if you have other health problems or are at risk of falls.

Your doctor should review your target range for your blood glucose levels regularly. Ask your doctor what target range is best for you.

 

Managing blood glucose levels

Growing older can increase the risk factors for hypos. These risk factors include having a poor appetite, or having kidney disease or other health conditions.

You may find that your warning signs for high or low blood glucose levels change. The warning signs may become less noticeable or feel like a normal part of aging. Talk to your doctor if you feel your warning signs are changing.

 

Getting older can mask some symptoms of diabetes

When you were younger, and your blood glucose levels were above target, you may have felt thirsty. As you age, you may lose your sense of thirst when your blood glucose levels are above target. This may affect the way you manage your diabetes and may unknowingly cause you to become dehydrated.

How your body uses medicines can change with age, and medicines can work differently if you have a poor appetite, miss a meal or become less active

As your body ages, it can change how it absorbs medicine. This could affect your blood glucose levels and how you manage your diabetes.

Top tips

  • Once you turn 65, ask your doctor to review your blood glucose targets regularly.
  • You’re never too old to start exercising. Talk to your doctor first, then start off slowly and build up—and do it with a friend.
  • Managing your diabetes can become more difficult with age. Communication is the key. Ask questions of all of your diabetes health professionals, and make sure they’re all talking to each other about your diabetes management as well.
  • Are you concerned about having hypos? You’re never too old to learn something new. If you’re not already using continuous glucose monitoring (CGM) or flash glucose monitoring (Flash GM), this might be something you should consider. CGM and Flash GM devices can alert you to blood glucose levels outside your target range. You can share the alerts with friends and family. Talk to your diabetes health professionals about CGM and Flash GM. 

The following may not affect you, but it’s important to tell your doctor if you:

  • have blood glucose levels that are regularly higher or lower than your target range
  • lose your appetite or appear to be losing weight without trying
  • have problems with tummy upsets or indigestion, or problems swallowing
  • have incontinence, constipation or other problems with your bowels or passing urine
  • have had a fall
  • have a sore mouth or problems with your teeth or dentures
  • often feel confused or forget things
  • feel sad or worried for more than two weeks
  • have problems with sexual health or wellbeing
  • have a new pain that is concerning you, or are feeling sore or uncomfortable
  • have trouble taking your medicines
  • have an infection in any part of your body
  • have trouble checking your blood glucose levels
  • have trouble doing household jobs such as cleaning, cooking or shopping
  • are taking any over-the-counter medicines or other drugs, or any herbal medications, vitamins or supplements.

You should also let a friend or family member know if you’re sick or having problems with your diabetes or everyday activities.

Australian Government programs and plans

The Australian Government has a range of programs and plans that can help older people living with diabetes. If you’re eligible, your doctor can help organise access for you.

Here are some programs and plans you could talk to your doctor about

GP Management Plan

A GP Management Plan is a plan written by your GP that describes your health care needs, sets out the services your GP will provide, and explains steps you can take to manage your condition yourself. Medicare will provide a rebate but you might have to pay a gap fee (co-contribution).

Team Care Arrangement

A Team Care Arrangement is organised by your GP. It will give you access to 5 consultations in 12 months with an allied health professionals such as a dietitian, diabetes educator and exercise physiologist. You will be eligible for a Medicare rebate for the Team Care Arrangement and for the allied health consultations. Ask if there is a gap payment when you book your appointment.

Home Medicines review

A pharmacist can come to your home and review your medicines and medication routine. Your GP then works with you on any adjustments needed. This service is supported by Medicare and comes at no cost to you.

Diabetes MedsCheck

You can make an appointment with your pharmacist to discuss your medications. This service is supported by Medicare and comes at no cost to you.

Aged Care Assessment Service

This can be organised by your GP if you need some extra help at home or if you’re considering moving to aged care.